Workshop

2.1 Study protocol

Co-design key aspects of the study protocol through the EXPERIMENT DESIGN CANVAS

People involved:

~40

Duration:

1.5 hours

When designing an epidemiological research study, there are many aspects to consider. Although researchers know best how to approach a research question in a scientifically sound way, citizens can provide their ideas and suggestions on important aspects of the study, such as the tools they would like to use to collect data or the frequencies to which they are willing to collect it. Involving citizens in this phase can contribute to increasing citizen's sense of belonging and, eventually, to fostering their participation in the data collection.

¿How can we involve citizens in the design of an epidemiological study?

Experiment Design Canvas

When designing an epidemiological research study, there are many aspects to consider. Although researchers know best how to approach a research question in a scientifically sound way, citizens can provide their ideas and suggestions on important aspects of the study, such as the tools they would like to use to collect data or the frequencies to which they are willing to collect it. Involving citizens in this phase can contribute to increasing citizen's sense of belonging and, eventually, to fostering their participation in the data collection.

Discover the tool in action!

Co-desing experiment for mental health and air pollution

Project:

CitieS-Health Barcelona Pilot

Promoters:

Ideas for Change, ISGlobal

WHAT

After a 6-months long co-creation process, participants of the Cities-Health Barcelona pilot decided to investigate how air quality, noise pollution and green spaces affect the mental health of adults living in the city. The research team wanted to design a scientifically rigorous experiment that enabled them to answer the research question while addressing participants preferences and including their ideas. To do so, we runned a workshop aimed to present different types of epidemiological studies, discuss their strengths and weaknesses and gauge participants' preferences and ideas.

WHY

To involve citizens in the design of an epidemiological study

To gauge citizens’ preferences in certain aspects of the study design.

HOW

Prepare materials. The Experiment Design Canvas is meant to be used during a workshop. Depending on whether the workshop is face-to-face or virtual, you will need to print the canvas or prepare an online version. In case it is online, remember to use a platform that allows collaborative edits of the canvas.    

You can download the canvas for face-to-face workshops in the section below, Get the Toolbox.

Set up the meeting. Disseminate the event among your community and send invitations by email and social media channels.

 

Explain how the canvas works: types of study design. The canvas is composed of different sheets, each representing a type of epidemiological studies, namely panel, observational and cross-sectional study. You can explain each type of study through a scenario, and describe strengths and weaknesses of each. You can see an example of scenario in the template in the section below, Get the Toolbox. 

 

Explain how the canvas works: types of data & data collection tools. In each sheet representing a study type, you will see different rows, corresponding to different aspects to be discussed with participants. In the first row, participants are invited to select the aspect of mental health they are most interested in, in the second row they reflect on the kind of data they are willing to collect, the third row is about the tool for collecting data. Remember that this canvas is just to inspire you, you can personalize it as you wish.

 

Let participants fill in the canvas and then discuss the results. First, each participant selects the study design that he/she would like to participate in, writing a cross in the sheet corresponding to the selected type. 

Then, in the sheet selected, she/he selects the kind of data she is most interested in collecting/sharing and any ideas of possible tools to use to collect it.

 

Design the study protocol and share it with participants. Taking into account people’s preferences gathered during this activity, scientists finalize the study protocol and distribute it to participants in order to keep them updated about the project and acknowledge their contributions.

 

Do you want more information about this tool?

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Get the toolbox!

We share with you some of the tools that can be useful to carry out this activity.

Experiment Design Canvas template (editable)

Experiment Design Canvas template (PDF)

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